Wednesday

We had a very difficult night, Helder had a lot of pain and discomfort which didn´t allow us to sleep. For most of the day Helder was trying to recover from difficulties of the night and spent many hours resting in bed, it seems that with every day he needs more and more of it.
In the last days Helder have to cope with more disturbing symptoms and since Monday we tried to arrange a home visit of the doctor. Today we encountered another failed attempt to find someone who could do it. The nurses from the paliative care are truly amazing women, they are so gentle, kind and supportive. They really want to help, the problem is they don´t have many available resources to use. It was very frustrating and also worrying to hear that the only way to see the doctor is to call an ambulance and go to the hospital in other city. It is not easy to get used to another system, the things in here are very diferent from how it is in England, it doesn´t mean that it is worse, it´s just very different and we didn´t work out yet how to manouvre well in this new reality. I don´t want to complain cause in the end Helder´s mum phoned a doctor, who is also a family member, and he voluntarily offered himself to come tomorrow to see Helder at home, so slowly things are moving on the right truck, in ways we didn´t expect.
To finish with a really good feeling I will show you a lovely pictures of Helder and his parents. Before lunch Helder managed to stand up from the bed and we all shared few wonderful moments in the sun ;)

[sorry everyone, picture have to wait, problems with computer :{