We had a difficult night. When the morning came we both felt like to shoot our eyes again and try to catch up on some sleep.
Helder managed to escape the reality from time to time, but for me the day was busier than normally, full of medical visits and practical things to be sorted out. In the morning we had the visit of physiotherapist who came to see how we could help Helder to be more comfortable and safe. Meanwhile Helder´s uncle brought for him the hospital bed with adjusted back- and leg-rest space, which was organised by the hospice nurses. All the family had a lot of work with re-arranging the space in our little ´appartment´ in order to fit in the new bed. In the right moment came around Helder´s cousin, Julieta, the heavens have sent her to give us a helpful hand and good advice ;) While Helder´s parents and Julieta were struggling with the furniture, me and Helder had another guests, firstly came our hospice nurses loaded with equipment sent by a physiotherapist and few minutes after arrived also doctor Paulo, our family doctor, who came to check how Helder is doing. For the first time since long time we had a good news, the antibiotic did its work, Helder´s lungs are clear and the level of oxygen in the blood have risen a bit! :) there are no words to describe surprise, relief, happiness and gratefulness in my heart after I heard that at least this is better.. :)
Evening brought again more stress and worries. It is not easy to respond to Oli and Helder in the same time. It must be so hard for Oli to witness Helder´s suffering and in the same time to be put aside while I am prioritising her dad´s needs over her´s..
In all of this we almost forgot that we meant to fly back to London today..
Helder managed to escape the reality from time to time, but for me the day was busier than normally, full of medical visits and practical things to be sorted out. In the morning we had the visit of physiotherapist who came to see how we could help Helder to be more comfortable and safe. Meanwhile Helder´s uncle brought for him the hospital bed with adjusted back- and leg-rest space, which was organised by the hospice nurses. All the family had a lot of work with re-arranging the space in our little ´appartment´ in order to fit in the new bed. In the right moment came around Helder´s cousin, Julieta, the heavens have sent her to give us a helpful hand and good advice ;) While Helder´s parents and Julieta were struggling with the furniture, me and Helder had another guests, firstly came our hospice nurses loaded with equipment sent by a physiotherapist and few minutes after arrived also doctor Paulo, our family doctor, who came to check how Helder is doing. For the first time since long time we had a good news, the antibiotic did its work, Helder´s lungs are clear and the level of oxygen in the blood have risen a bit! :) there are no words to describe surprise, relief, happiness and gratefulness in my heart after I heard that at least this is better.. :)
Evening brought again more stress and worries. It is not easy to respond to Oli and Helder in the same time. It must be so hard for Oli to witness Helder´s suffering and in the same time to be put aside while I am prioritising her dad´s needs over her´s..
In all of this we almost forgot that we meant to fly back to London today..
No comments:
Post a Comment