Monday, December 31, 2012

Sunday, 30.12.2012

Today Helder continued  to share more of his beloved Algarve with us. He woke up with more energy and after a late breakfast we all set off in two cars with Helder´s parents, sister Letta  and little Daniel to Caveirero, a strikingly unusual seaside town nestling from the cliffs down to the beach. After we parked Helder tried to manouver his wheelchair by himself to the beach but soon realised it isn´t as easy as it seems, lots more practice needed! So with Olivia hitching a ride on his lap and Letta steering them, our little procession made its way eagerly to the water.
Oli had a wonderful time running from the waves with all the adults holding our breath as the waves got stronger. At one time an unexpectedly large wave came so close to us that even Helder was quick to get out of his chair signalling time for us to move to a nearby cafe for Justyna´s favourite ´galao´, with Helder tasting the crepes and ice cream for the kids. We were all pleased to see Miriam who had recently visited Helder and Justyna in London.
The excursion was another mission accomplised for Helder but also left him exhausted. He rested for a couple of hours and then had energy to chat with his cousin Julietta and to join the family for dinner around the table.
It was another special day for us, sharing it with Helder, Justyna, Oli and all the family. Not having visited the Algarve before, we can now appreciate why it is so dear to Helder. Although he is physically weak and often in pain and discomfort, his strength of spirit as well as Justyna's constant loving care moves us deeply. We are cherishing every moment here. (shared by Tom & Shubhi)



 


 
 
 
 

Sunday, December 30, 2012

Beautiful Day

The wish came true and Helder found today more energies to show the places near to his heart to Shubhi and Tom. We did an amazing journey, we watched Praja de Marinha from the cliffs and we had a lovely snack at Benagil, where also Shubhi and Oli happily puddled in the cold but very inviting sea. After we drove still to couple of beaches close to the Carvoeiro, stopping for a while at the chapel above the Carvoeiro itself to see the spot where Helder drew sketches to two of his famous paintings ;)

 

 

Friday, December 28, 2012

New arrivals at home

The wind brought us more friends again to the house. In the morning we had a short but very appreciated visit of Carla, Luis, Didi and Kiko, and in the afternoon arrived long awaited Shubhi and Tom. It is wonderful to have them here in Algarve, in my land. Olivia couldn´t wait to see them and from the very moment they arrived at home she kept them very busy with the games they played and books they read together. I didn´t find yet the energy to give Shubhi and Tom a proper welcome, maybe tomorrow I will get more energies to do something together and to show them around.
 

Thursday, December 27, 2012

Day to remember!

..and so it could be another ´day to forget´..
Helder had a very difficult night, all day he was trying to recover from it but it was not easy.. now Helder is resting next to me and I am thinking about everything what have happened today- it is true, it was very hard day, but I don´t want to forget it, I want to remember every single minute of it! Even feeling so exhausted physically, Helder made an enormous effort and took all of us to two special places -to the little chapel build on the cliff above the sea, where his mum is going to pray everyday, and to the Albandeira, the beach which is closest to Helder´s heart. It is amazing how Helder is going against all the difficulties and challenging own limitations - I feel so lucky, blessed and grateful to be his wife.. We went together through so much, we don´t know where we are going to but, because we are together, every single moment of this journey is precious..  Who knows what will bring us a new day.. :)  
 





 

Wednesday, December 26, 2012

A day to forget

It was not a good day.The nurses came around to try to give some new ideias.

Tuesday, December 25, 2012

Day for the toys

The was a completely mess today,full of toys. I have been with belly,pain, I started a new medicine for to provoke diarrhea, to see if realise more the bowels. I look forward to have more energies to could discover and play with their presents.



Consoada 2012

The pain was smooth but the colic did not stop, even though I did not give up for the good food in Christmas, My sister was is charge for most of the food for the Consoada in a team with Bimbo. In the evening we did tried to find the starts in zenith,but unfortunately the sky was too cloudy. But the night was a peaceful and full of Love






Sunday, December 23, 2012

Christmas Eve Eve

If the only thing that importants is each moment, so I am enjoying this days, I do not want perfect days, just enough to have days as I am having, with calm and serenity, I am eating a bit more and the friends still appear surprisingly helping me to slowlly and gradually climbing my fears. It is memorable also to find this atmosphere at home, with a lot of Peace.



Saturday, December 22, 2012

Hairdress

I am finding again my breakfast of my childhood, the Cereal Nestum. All is almost distanceless from my bed, my first toilets of the day is also in the beach. Even if not perfect, there are more and more reasons to enjoy each day. Finally, Olivia had her first experience of her life in a hairdress. She looks happy with her new appearence, the same for us, she looks sweeter.

Today I cold not get ride of the pain again, neverthless was great to see some friends who come from Lisbon, Pedro, Chora and Paulo who shared with me some moments of laugh.
 









Friday, December 21, 2012

Please for the End of the World

They promise me the end of the world, but I cannot complan, I had another surprise, my friend Filipe appear here with other friend, Appamado.It was enought to give us a great day. This when the person who should be offered surprises were Filipe, has this was is birthday. Only the nights I cannot get ride of the pain in my belly.



 

Thursday, December 20, 2012

Getting better

Today was a special day, I felt free from pain for large periods of the day, I was almost half day without need of painkiller. In the morning we enjoyed the Sun, we did a walk to the beach together, and I tasted the lunch cooked by my mother. In the afternoon we had a wonderful surprise visit of Pajo. A day, that better is almost impossible.